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Anoufriev Slavik Anoufriev Slavik, 4,5, Moscow, neuroblastoma. Collection of 22 thousand dollars to pay for further treatment in Israel. As of March 17, 2011 Amount: $ 22,000 Collected: 3 $ 688.30 Left: 18 $ 311.7 Deadline: April 25 From a letter to parents: "We, the parents, very painful and embarrassing for the medicine in our country. Our child Slavik 4.5 years is very sick. We believe the child's health above all else, and fight for it and will continue to fight hard. We close encounter with the Russian medicine in October 2009, and it was a nightmare. We have appealed to both paid and free clinics in Moscow, and despite the fact that we have the large family of Muscovites, care and understanding of medicine was not. On the advice of friends, we got a paid appointment with rheumatologist. After this analysis have been paid, ultrasound, x-rays, blood tests. The baby's condition deteriorated with each passing day, the temperature was still high. We have registered first Nise, then diclofenac after Indomethacin, Slavik but nothing helped, he cried at night from the pain, ask us for help. A child who is only 4 years old, pleaded for help! We called an ambulance, but all that they offered to do - is to take Slavik to the hospital and inject an anesthetic. We went every week since November 2009, the Institute of Rheumatology at Kashirke. In late December we decided to put the children's department of the Institute of Rheumatology. After a full examination of the Institute of us was diagnosed with "reactive arthritis", was released us with a measure of SEC 75 and a temperature of 37.5. It happened on Jan. 27, 2010. By the time the child could not do without pain. After discharge, we turned to the deputy chief doctor of children's department clinics, it is with great effort was able to give us directions to the Institute of Pediatrics in the rheumatology department (only for subscribers - 3500 rub. A day). We had to re-pass all the tests. On CT scan revealed right adrenal tumor. Taken from the chest bone marrow - indicators were normal. Then 3 more times to take bone marrow from different places, were sent to St. Petersburg and Kashirke, but nowhere have not been able to detect. The doctors had only one "hook" - the adrenal gland. After repeated CT found changes in the bones - and it all started again. We lay on Slavik in pediatrics, and thus went on to Kashirke doobsledovanie. Newly passed all the tests, 6 times passed bone marrow and a piece of bone - and again the doctors found nothing. Finally, the bone scan done. It turned out that Slavik 4-th stage of the cancer. It was a heavy blow for us. It was completely unclear how many times you can take bone marrow for examination and found nothing. The doctor just spread his arms: they say, it happened the first time in his twelve-year practice. He sent us on scintigraphy with MIBJ. After the result MIBJ doctors gathered a council and told us that Slavik affect more than half of the skeletal system, and we must prepare for the worst. In this case, at that time there were three possible diagnoses: 1) Neuroblastoma 2) Kologenoz 3) lupus erythematosus The doctors decided to do another MRI examination and take the bone marrow of the bones left leg, when in fact they took the bone marrow directly from 4 sites without parental permission, explaining to us that so decided a consultation of physicians. The operation took place at 12 am under heavy anesthesia, and in 15 hours we already kicked out of day care, told us that their working day is over, even though the child was still under anesthesia. Upon his arrival home in 17 hours the child was asleep before nine o'clock. Two days later we went to the council of the institute Blokhin. Doctors have been unable to deliver the final diagnosis, and proposed to remove the adrenal gland, and then send it for examination, and after receiving the survey results suggest the tactics of treatment. We refused admission, as at that time were negotiating with the Israeli clinic Ichilov. This decision was correct: we were invited to attend the examination in the future to treat. All friends and acquaintances urged not to delay the trip. We have seen: a child was melting in his eyes. However, for this needed a lot of money. Slavik grandmother sold her apartment and to register with us. On May 8, we flew to Israel, and 9 th were already at the doctor's office, on the same day at Slavik took all the blood tests and abdominal ultrasound done, May 15, Slavik made of PET-City and discovered a malignant tumor, and, not in the place where the supposed Russian doctors, and near the lumbar vertebra. Tumor in the adrenal gland was secondary, it is not accumulated radioisotopes. Now we are sure: if we have agreed to an operation in Moscow, then we would have lost a child. Thank God it did not happen. At the moment we are in the children's ward of the hospital, undergoing chemotherapy. The entire course of treatment designed for one and a half years. We ask you to help Slavik money needed for bone marrow transplantation and resection of primary tumor. Treatment worth 102,000 dollars. Bone marrow transplantation are planning to do in mid-September. Our kid wants to get back to his home to see my brother and sister to play with them, as it was before the illness. Now he sculpts out of clay little animals, breaks them again and again says he wants to go home! We ask you to help us Slavik. Slavik asked the Lord for help from the Holy Sepulcher. He prayed, as an adult. We believe that God and people hear it. " Medical records News Tuesday, December 7, 2010 The money collected, fund-raising is closed. Dear contributors, we thank each of you! How nice that you are close to the children who so need your help and support. Thursday, December 2, 2010 From a letter to my mother: "Hello! Slavik walked 8 blocks of chemistry therapy and three blocks of high-chemistry with an interval of 21 days, the gap is needed in order that would restore the blood parameters. High-chemistry is 7 days to drip chemistry. Slavino condition was serious, we tried to convince him that he had suffered, he believes that doctors and dear, kind God to help him. After all parameters of blood chemistry falls to zero. After chemotherapy, we go to day care, Slavik drip every day platelets and blood (hemoglobin up), we do Slava injections (Neupogen) to restore immunity. October 24 at Slavik took bone marrow and bone for examination. Oct. 28 came the answer. The bone marrow is cleared by 75 percent, and a whole lot of positive changes have gone metastasis of bone, decreased primary tumor. Slavik began to move more, even run, was less sit in a wheelchair. October 31 Slavik did an MRI of the head. Since the first of November Slavik was appointed two blocks high-dose chemotherapy. 7 days in the hospital after complete recovery of blood (21 days), the second block of chemotherapy treatment for 7 days. Slavik hard to tolerate chemotherapy, but we try and encourages him, and the staff also encourages him and bring him gifts, and come the clowns and volunteers, they are painting with children playing, molded from clay, are engaged with the children what they might have been easier lying in a hospital. Slavik often recalls Moscow apartment where we lived, wants to see again my brother and sister and play with them. He looks forward to his recovery. At the moment, Slavik was the third high-chemistry, blood counts dropped, now Slavik to restore the blood to drip blood platelets, blood, injections (Neupogen). MRI of the head is good. Tumors and metostaz in the head were found. Bone marrow transplant and surgery to remove the primary tumor, and irradiation was moved to the end of December, early January. Transplant will be done only after the bone marrow is completely cleared of cancer cells. At the expense of the operation our doctor recommends that we pick up a clinic, where during the operation makes irradiation, which reduces the risk of returning cancer cells and recurrence to zero. Our doctor Elhazid said that we do not strayed much from the graphics protocol, and gave us faith in the healing of our child. Two children, flew home last week in Russia is completely healthy. And we also believe that Slavik everything will be fine. With all my heart we thank the donors who help our child, God give you health, happiness and love. C respect for you Slavik, Helen, Nicholas " Tuesday, August 31, 2010 Yesterday Slavik began the first block of high-chemistry. Child feels stable, agreed to eat an apple. Fundraising continues. Please respond to donors. Thursday, August 26, 2010 From a letter to my mother: "I Slavik ended Aug. chemistry course. Have done studies of bone marrow, MRI, PET CITY, research decreased swelling, and bone marrow are still present in a small number of cancer cells. Council of physicians, adhering to the protocol, has appointed two high-chemistry of 7 days each, with an interval of 21 days (for restoration of blood). " Fundraising continues. Please respond to donors. |
